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nshd_99_cq
MRC NATIONAL SURVEY OF HEALTH AND DEVELOPMENT
University College London Medical School
Department of Epidemiology and Public Health
NURSE INTERVIEW 1999
CAPI Version 5
23rd January 2002
KEY
Normal text Nurse reads this out to cohort member
Bold Emphasis for the nurse when reading out question
Italics Instruction to nurse only
# Instruction to nurse to press shift and F2 to save
^ Instruction to nurse to press 1 to continue
[ ] Indicates inserted feed forward data from elsewhere
FF Warren's feed forward data
LFF Local feed forward data (i.e. data collected in interview)
SFF SCPR feed forward data

Point number

Point number

Serial number

Serial number 1001-7002

Interview date Version: Ver05. # ^

Generic date

Before I start the interview, I need to check that I have opened the right file for you.

1
Male
2
Female

Can I check? What day in March is your birthday? Birth date

Date in March

Can I check, is your name still ... (read from ARF) or have you changed it for any reason?

1
Same
2
Changed
If Changed to question 6
qc_6 == 2
Nurse: please record name change details in full on ARF page 1 by label. ^

Nurse: please code whether you are interviewing the cohort member themselves or conducting a proxy interview with the cohort member's carer?

1
Interview conducted with cohort member
2
Interview conducted with carer
If Interview conducted with cohort member to question 7 go to Q8a
qc_7 == 1

Before we begin the interview, I need to get your written permission to carry out this interview. Please read and sign Consent Form 1.

1
Form 1 signed
2
Form 1 refused
If Form 1 signed to question 8
qc_8 == 1
Nurse: circle codes 01 and 04 on front of consent booklet. ^
If Form 1 refused to question 8
qc_8 == 2
Nurse: circle codes 02, 04, 06, 08, 10, 12, 14, 16, 18, 20, 22, 24 and 26 on front of consent booklet.
If Interview conducted with carer to question 7 go to Q8b
qc_7 == 2

Before we begin the interview, I need to get your written permission to carry out this interview on behalf of the cohort member. Please read and sign Consent Form 2.

1
Form 2 signed
2
Form 2 refused
If Form 2 signed to question 8b
qc_8_b == 1
Nurse: circle codes 02 and 03 on front of consent booklet. ^
If Form 2 refused to question 8b
qc_8_b == 2
Nurse: circle codes 02, 04, 06, 08, 10, 12, 14, 16, 18, 20, 22, 24 and 26 on front of consent booklet.
If Form 1 refused to question 8 or Form 2 refused to question 8b go to Q133
qc_8 == 2 || qc_8_b == 2
Else

Nurse to code: Is cohort member in an institution?

1
Yes
2
No

I would like to start by asking you some questions about your household. How many people in total live in this household, including yourself? Number

Number 1-20
(If total is one, go to Q14)
qc_10 == '1'
Else

Do you have a husband/wife or partner living in this household?

1
Spouse
2
Partner
3
Neither

How many children under 16 live in your household all of the time? Include any step, adopted or foster children you are responsible for. Number

Number 0-15

Now children aged 16 or over, including grown up ones. How many live in your household all of the time? Number

Number 0-15

Now I would like to get some general information about your household. Does your household own or rent this accommodation? Please give an answer from this card.

1
Owns it or is buying it
2
Renting it from the Council
3
Renting if from a relative
4
Renting it from a private landlord
5
Renting it from a housing association
6
Other (please specify)
If Other (please specify) to question 14 go to Q14b
qc_14 == 6

In what way does your household occupy this accommodation?

Other

I would now like to update our records about marriages and partners. First, what is your current marital status ...

1
Single, that is never married
2
Married and living with your husband/wife
3
Married and separated from your husband/wife
4
Divorced
5
Or, widowed?
If Married and living with your husband/wife, Married and separated from your husband/wife, Divorced, or Or, widowed? to question 15 go to Q15b
qc_15 == 2 || qc_15 == 3 || qc_15 == 4 || qc_15 == 5

Can I check, have you been married once or more than once? Number

Number 0-9
If Single, that is never married to question 15 go to Q15c
qc_15 == 1

Since we last interviewed you in [FF], have you lived with a partner for more than a year?

1
Yes
2
No
If Yes or No to question 15c go to Q17
qc_15_c == 1 || qc_15_c == 2
Else
_marriage < &&

Thinking of your [LFF e.g. first/second/last] marriage, when were you married. Can you tell me the year? Year or age

Number 16-1999

How did this marriage end?

1
Marriage not ended
2
Death
3
Divorce
4
Separation
If Death to question 16b go to Q16c
qc_16_b == 2

When did your partner die - just tell me the year. Year

Year 1956-2000
If Divorce or Separation to question 16b go to Q16d
qc_16_b == 3 || qc_16_b == 4

When did you stop living together - just tell me the year? Year

Year 1956-2000
If more marriages, go back to Q16a
If Yes or No to question 15c or Marriage not ended to question 16b go to Q17
qc_15_c == 1 || qc_15_c == 2 || qc_16_b == 1

Turning now to children of your own ... Refer only to biological children. Exclude still births and miscarriages. ^ Have you ever had any children of your own.

1
Yes
2
No
If No to question 17 go to Q20
qc_17 == 2
Else

How many children of your own have you had altogether? Number

Number 0-25
(_children <= qc_17_b) && (_children < 26)

Thinking of your [LFF e.g. first/next/last] child ... ^ What is your child called?

Generic text

Is [LFF] a boy or girl?

1
Boy
2
Girl

In what year was [LFF] born? Year

Year 1960-2000
If more children, ^, go back to Q18

Do any of your own children now have children of their own?

1
Yes
2
No
If No to question 19a go to 20
qc_19_a == 2
Else

In what year was the first one born? Year

Date of birth

Now something about hospital treatment. Since we last saw you in [FF year], when you were [FF age], have you been admitted to hospital as an in-patient?

1
Yes
2
No
If No to question 20 Nurse: circle code 06 on front of consent booklet.^ go to Q23
qc_20 == 2
Else

How many times have you been admitted to hospital since we saw you last in [FF year]? Number

Number 1-25
(_admissions <= qc_20_b) && (_admissions < 26)

I would like some information about your in-patient admissions. ^ Thinking of the [LFF time e.g. first/last] time you were in hospital as an in-patient since we last saw you in [FF]. Which hospital did you go into? ...

Generic text

Which town was this in?

Generic text

Were you an NHS or a private patient?

1
NHS
2
Private

When did you go in, first tell me the month and then the year? Month

Month of year

And the year? Year

Year 0-2000

Why were you admitted to hospital as an in-patient on this occasion?

Generic text

What was the name of the ward you were in?

Generic text

What was the name of the doctor who was in charge of your case while you were in hospital?

Generic text
If more inpatient hospital admissions, go back to Q21a

Thank you for your help with these questions. It is possible that the research team at the Medical Research Council would like to obtain more information from the hospital's records. May we ask your permission to consult your hospital records?

1
Yes, permission given
2
Permission refused
If Permission refused to question 22 Nurse: circle code 06 on front of consent booklet.^ go to Q23
qc_22 == 2
Else

Before the Medical Research Council can look at your records, they need to have your written consent to confirm that you have no objection to them collecting fuller information about your in-patient stay(s) in hospital. Please read and sign Consent form 3.

1
Signature obtained on Consent Form 3
2
Signature not obtained (Enter note to say why)
If Signature obtained on Consent Form 3 to question 22b
qc_22_b == 1
Nurse: circle code 05 on front of consent booklet. ^
If Signature not obtained (Enter a note to say why) to question 22b
qc_22_b == 2
Nurse: circle code 06 on front of consent booklet. ^

Now some questions about going into hospital as a day patient for treatment or surgery. Since we last saw you in [FF year], aged [FF age], have you spent a day at a hospital for treatment or surgery and then come home at the end of the day?

1
Yes
2
No
If No to question 23 go to Q25
qc_23 == 2
Else

Have you been in hospital as a day patient for just one illness or condition or have you been in for more than one type of problem? Number

Number 1-25
(_admissions <= qc_23_b) && (admissions < 26)

I would like some information about the problems that caused you to go into hospital as a day patient for treatment or surgery. What was the illness or condition that was being treated on the first occasion since [FF year]

Generic text

In which year or what age did you go into hospital as a day patient for this first problem? Year

Year 0-2000
If more day patient admissions, go back to Q24a.

Now I am going to ask you some questions about your general health. Have you ever been told by a doctor that you have had angina?

1
Yes
2
No
If No to question 25 go to Q26
qc_25 == 2
Else

How old were you when you first had this problem? Age

Age 0-53

Have you had any more attacks since then?

1
Yes
2
No
If No to question 25c go to Q25e
qc_25_c == 2
Else

How old were you when you last had this problem? Age

Age 0-53

Have you consulted a doctor or other health professional about your angina in the last 12 months?

1
Yes, a doctor
2
Yes, another health professional
3
No
If No to question 25e go to Q25h
qc_25_e == 3
Else
If Yes, another health professional to question 25e go to Q25g
qc_25_e == 2
Else

How often have you consulted a doctor about your angina in the last 12 months? Number

Number 0-100
If only consulted a doctor, go to Q25h.
qc_25_e == 1 && qc_25_e == 2

How often have you consulted a health professional about your angina in the last 12 months? Number

Number 0-100

Have you taken any prescribed medicines or tablets for your angina in the last 12 months?

1
Yes
2
No
3
(Can't remember)
If No or (Can't remember) to question 25h go to Q26
qc_25_h == 2 || qc_25_h == 3
Else

Please tell me the name of the prescribed medicines or tablets that you have taken for this in the last 12 months.

Generic text

Have you ever had any pain or discomfort in your chest?

1
Yes
2
No
If Yes to question 26 go to Q26c
qc_26 == 1
Else

Have you ever had any pressure or heaviness in your chest?

1
Yes
2
No
If No to question 26b go to Q27
qc_26_b == 2
Else

Do you get it when you walk uphill or hurry?

1
Yes
2
No
3
Never walks uphill or hurries
If No to question 26c go to Q27
qc_26_c == 2
Else

Do you get it when you walk at an ordinary pace on the level?

1
Yes
2
No
3
Never walks
If Never walks to question 26d go to Q27
qc_26_d == 3
Else

What do you do if you get it while walking? Do you

1
Stop or slow down
2
Carry on or
3
Carry on after taking a nitro-glycerine tablet under your tongue?
If Carry on or or Carry on after taking a nitro-glycerine tablet under your tongue? to question 26e go to Q27
qc_26_e == 2 || qc_26_e == 3
Else

And if you stand still what happens to it. Does the pain in your chest

1
Go away
2
Or not go away?

How soon does it go away. Does it go in

1
10 minutes or less
2
Or more than 10 minutes?
If Or more than 10 minutes? to question 26g go to Q27
qc_26_g == 2
Else

Will you show me where you get this pressure or heaviness in the chest?

1
Sternum (upper or middle)
2
Sternum lower
3
Left anterior chest
4
Left arm
5
Right anterior chest
6
Right arm
7
(Somewhere else)

Did you see a doctor or hospital specialist because of this pain or discomfort?

0
No
1
Yes, GP
2
Yes, hospital specialist

Do you get pain in either leg on walking?

1
Yes
2
No
3
Respondent is chair/bed bound
If No or Respondent is chair/bed bound to question 27 go to Q28
qc_27 == 2 || qc_27 == 3
Else

Does this pain ever begin when you are standing still or sitting?

1
Yes
2
No
If Yes to question 27b go to Q28
qc_27_b == 1
Else

In what part of your leg do you feel this pain or discomfort?

1
In calf muscle(s)
2
Not in calf muscle(s)
If Not in calf muscle(s) to question 27c go to Q28
qc_27_c == 2
Else

Do you get it if you walk uphill or hurry

1
Yes
2
No
3
Never hurries or walks uphill
If No to question 27d go to Q28
qc_27_d == 2
Else

Do you get it when you walk at an ordinary pace on the level?

1
Yes
2
No
3
Never walks
If Never walks to question 27e go to Q28
qc_27_e == 3
Else

Does the pain ever disappear while you are walking?

1
Yes
2
No
If Yes to question 27f go to Q28
qc_27_f == 1
Else

What do you do if you get it when you are walking? Do you

1
Stop or slow down
2
Carry on
If Carry on to question 27g go to Q28
qc_27_g == 2
Else

What happens to it if you stand still. Is the pain

1
Still not relieved
2
Or does it go away?
If Still not relieved to question 27h go to Q28
qc_27_h == 1
Else

How soon does it go away. Does it go in

1
10 minutes or less
2
Or more than 10 minutes?

Have you ever suffered from a heart attack?

1
Yes
2
No
If No to question 28 go to Q29
qc_28 == 2
Else

How many heart attacks have you had? Number

Number 1-20

Who diagnosed these heart attack(s). Was it

1
A GP,
2
A specialist,
3
Or was no medical diagnosis made?

How old were you when you had your first heart attack? Age

Age 0-53

How old were you when you had your most recent heart attack? Age

Age 0-53

Now I would like to ask you about some more specific health problems or illnesses. #^ Looking at this card, please tell me which of these kinds of heart trouble you have had, if any, in the last ten years that is since you were 43 years old?

1
Coronary thrombosis
2
Myocardial infarction
3
Valvular disease
4
Aortic stenosis
5
Ischaemic heart disease
6
Tachycardia
7
Palpitations or heart murmur
8
Other (please specify)
9
None of these
If Other (please specify) to question 29 go to Q29b
qc_29 == 8

What kind of heart trouble have you had?

Other
If Coronary thrombosis, Myocardial infarction, Valvular disease, Aortic stenosis, Ischaemic heart disease, Tachycardia, Palpitations or heart murmur or Other (please specify) to question 29 go to Q29c
qc_29 >= 1 && qc_29 <= 8

Has a doctor said you had this problem?

1
Yes
2
No
If No to question 29c go to Q30
qc_29_c == 2
Else

How old were you then? Age

Age 0-2000

Have you had any kind of blood pressure problems in the last ten years that is since you were 43 years old?

1
Yes
2
No
If No to question 30 go to Q31
qc_30 == 2
Else

What blood pressure problems have you had?

1
Hypertension/high blood pressure
2
Low blood pressure
3
Other kind of blood pressure

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then? Age

Number 0-2000

And in the last ten years (that is since you were 43 years old,) have you had a stroke?

1
Yes
2
No
If No to question 31 go to Q32
qc_31 == 2
Else

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then? Age

Number 0-2000

And in the last ten years (that is since you were 43 years old,) have you had a thyroid disorder?

1
Yes
2
No
If No to question 32 go to Q33
qc_32 == 2
Else

What kind of thyroid disorder have you had?

1
Goitre
2
Hyperthyroidism
3
Hypothyroidism
4
Other

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then? Age

Number 0-2000

And in the last ten years (that is since you were 43 years old,) have you had meningitis or encephalitis?

1
Yes
2
No
If No to question 33 go to Q34
qc_33 == 2
Else

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then? Age

Number 0-2000

(And) in the last ten years (that is since you were 43 years old,) have you had shingles?

1
Yes
2
No
If No to question 34 go to Q35
qc_34 == 2
Else

Did you have shingles

1
Yes, involving the eyes
2
Yes, not involving the eyes
3
No

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then? Age

Number 0-2000

And in the last ten years (that is since you were 43 years old,) have you ever had any fits or epilepsy?

1
Yes
2
No
If No to question 35 go to Q36
qc_35 == 2
Else

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then? Age

Number 0-2000

And in the last ten years (that is since you were 43 years old,) have you had cancer?

1
Yes
2
No
If No to question 36 go to Q37
qc_36 == 2
Else

Looking at this card [please tell me what type of cancer you have had in the last ten years?

1
Leukaemia
2
Hodgkin's disease
3
Lymphoma
4
Skin cancer
5
Bone cancer
6
Breast cancer
7
Cancer of the uterus
8
Cancer of the cervix
9
Cancer of the colon
10
Other (specify)
If Leukaemia, Hodgkin's disease, Lymphoma, Skin cancer, Bone cancer, Breast cancer, Cancer of the uterus, Cancer of the cervix or Cancer of the colon to question 36b go to Q36d
qc_36_b >= 1 && qc_36_b <= 9
Else

What other kind of cancer have you had?

Other

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then? Age

Number 0-2000

And in the last ten years (that is since you were 43 years old,) have you had Chronic fatigue syndrome or Myaligic encephalomyelitis, better known as ME?

1
Yes
2
No
If No to question 37 go to Q38
qc_37 == 2
Else

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then?

Number 0-2000

And in the last ten years (that is since you were 43 years old,) have you had diabetes?

1
Yes
2
No
If No to question 38 go to Q39
qc_38 == 2
Else

What kind of diabetes have you had. Was it

1
Insulin-dependent
2
Non-insulin dependent or
3
High blood sugar or
4
Some other kind of diabetes?

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then?

Number 0-2000

And in the last ten years have you had asthma?

1
Yes
2
No
If No to question 39 go to Q40
qc_39 == 2
Else

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then?

Number 0-2000

And in the last ten years that is since you were 43 years old, have you had hay fever?

1
Yes
2
No
If No to question 40 go to Q41
qc_40 == 2
Else

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then?

Number 0-2000

And in the last ten years have you suffered from migraines?

1
Yes
2
No
If No to question 41 go to Q42
qc_41 == 2
Else

Has a doctor said you had this problem?

1
Yes
2
No

How old were you then?

Number 0-2000

(And in the last ten years that is since you were 43 years old,) have you had a sudden speech problem which got better after a day?

1
Yes
2
No

(And) in the last ten years (that is since you were 43 years old,) have you had sudden sight problems which got better after a day?

1
Yes
2
No

And in the last ten years (that is since you were 43 years old,) have you had a sudden weakness in an arm or leg which got better after a day?

1
Yes
2
No

And in the last ten years (that is since you were 43 years old,) have you had anaemia?

1
Yes
2
No

(And in the last ten years) have you had any liver diseases?

1
Yes
2
No

(And in the last ten years) have you had any stomach trouble such as ulcers, gastritis or acid indigestion?

1
Yes
2
No

(And in the last ten years) have you had gall bladder trouble?

1
Yes
2
No

(And in the last ten years) have you had any kidney or bladder infections?

1
Yes
2
No

(And in the last ten years) have you had a hernia?

1
Yes
2
No

(And in the last ten years) have you had any allergies?

1
Yes
2
No

(And in the last ten years) have you had cataracts, glaucoma or other serious eye trouble?

1
Yes
2
No

(And in the last ten years) have you had any skin trouble such as eczema or psoriasis?

1
Yes
2
No

(And in the last ten years) have you had any persistent trouble with your gums or mouth?

1
Yes
2
No

Do you now regularly take any prescribed medicines?

1
Yes
2
No
If No to question 55 go to Q56
qc_55 == 2
Else

What are they called?

Generic text

Do you usually cough first thing in the morning in the winter?

1
Yes
2
No
(If no to both 56a & b go to Q57)
qc_56 == 2 && qc_56_b == 2
Else

Do you usually cough during the day or night in winter?

1
Yes
2
No

Do you cough like this on most days for as much as 3 months each year?

1
Yes
2
No

Do you usually bring up any phlegm (spit from the chest) first thing in the morning in winter?

1
Yes
2
No

Do you usually bring up any phlegm during the day or at night in winter?

1
Yes
2
No

Do you bring up phlegm on most days for as much as 3 months each year?

1
Yes
2
No

In the past 3 years, have you had a period of cough and phlegm lasting for 3 weeks or more?

1
Yes
2
No

Does your chest ever sound wheezy or whistling?

1
Yes
2
No
If No to question 57e go to Q57g
qc_57_e == 2
Else

Do you get this most days or nights?

1
Yes
2
No

During the past 3 years, have you had any chest illness, for example, bronchitis or pneumonia, which has kept you off work or indoors for a week or more?

1
Yes
2
No
If No to question 57g go to Q58
qc_57_g == 2
Else

How many illnesses like this have you had in the last 3 years. Have you had

1
One or
2
More than one

Did you consult a doctor about this during the last 3 years?

1
Yes
2
No

Now a few questions about smoking. Can I check, do you smoke cigarettes at all nowadays?

1
Yes
2
No
If No to question 58 go to Q59
qc_58 == 2
Else

How many cigarettes a day do you usually smoke?

Number 1-300

What is the main brand of cigarettes you smoke?

Generic text

Enter the 4 digit cigarette brand code.

Number 0-9999
If No to question 58 go to Q59
qc_58 == 2

Have you ever smoked cigarettes regularly, by which I mean at least one cigarette a day for 12 months or more?

1
Yes
2
No

Do any of the people you live with smoke cigarettes at home?

1
Yes
2
No
3
Not applicable
If No or Not applicable to question 60 go to Q61
qc_60 == 2 || qc_60 == 3
Else

Thinking about all the people you live with, on average, about how many cigarettes a day do they smoke at home? Number

Number 0-90

Do you smoke a pipe?

1
Yes
2
No
If No to question 61 go to Q62
qc_61 == 2
Else

How much pipe tobacco do you usually smoke per week?

1
Grams or
2
Ounces

Nurse: Enter amount in grams. Amount

Grams

Nurse: Enter amount in ounces. Amount

Ounces

What brand of tobacco you smoke?

Generic text

Do you smoke cigars?

1
Yes
2
No
If No to question 62 go to Q63
qc_62 == 2
Else

How many cigars do you smoke per week?

Number 0-300

What brand of cigars you smoke?

Generic text

Did either of your parents smoke cigarettes, cigars or pipes when you lived with them as a child?

1
Mother smoked
2
Father smoked
3
Neither smoked
4
Can't answer

Now some questions about your family? #^ Can I now check, is your natural mother alive?

1
Yes
2
No
If Yes to question 64 go to Q65
qc_64 == 1
Else

How old was your mother when she died? Age

Age 10-120

What was the date of her death, the year first please? Year

Date of death

The month please? Month

Month of year

The day please? Day

Day of month

What was the cause of her death?

Generic text

(Can I now check,) is your natural father alive?

1
Yes
2
No
If Yes to question 65 go to Q66
qc_65 == 1
Else

How old was your father when she died? Age

Age 10-120

What was the date of his death, the year first please? Year

Date of death

The month please? Month

Month of year

The day please? Day

Day of month

What was the cause of his death?

Generic text
If male respondent go to Q73
qc_4 == 1
Else

I would now like to ask you some questions about mammograms, which are x-rays of the breast. Have you ever had a mammogram?

1
Yes
2
No
If No to question 66 go to Q69
qc_66 == 2
Else

When did you have your first mammogram. Please either tell me the year or how old you were at the time?

1
Age
2
Year
If Age to question 67 go to Q67b
qc_67 == 1

Age

Age 0-53
If Year to question 67 go to Q67c
qc_67 == 2

Year

Year 1946-2001

What is the name of the hospital/medical facility you attended for your mammogram?

Generic text

What town is the hospital/medical facility in?

Generic text

Was the mammogram part of a routine breast screening?

1
Yes
2
No

Was anything abnormal found in your first mammogram?

1
Yes
2
No
If No to question 67g go to Q67i
qc_67_g == 2
Else

What was found?

Generic text

Have you had any other mammograms since the one we've just talked about?

1
Yes
2
No
If No to question 67i go to Q69
qc_67_i == 2
Else

When did you have your most recent mammogram. Please either tell me the year or how old you were at the time?

1
Age
2
Year
If Age to question 68 go to Q68b
qc_68 == 1

Age

Age 0-53
If Year to question 68 go to Q68c
qc_68 == 2

Year

Year 1946-2001

What is the name of the hospital/medical facility you attended for your mammogram?

Generic text

What town is the hospital/medical facility in?

Generic text

Was the mammogram part of a routine breast screening?

1
Yes
2
No

Was anything abnormal found in your most recent mammogram?

1
Yes
2
No
If No to question 68g go to Q69
qc_68_g == 2
Else

What was found?

Generic text

Have you ever consulted a doctor about breast lumps?

1
Yes
2
No
If No to question 69 Nurse: circle code 08 on front of consent booklet. ^ go to Q73
qc_69 == 2
Else

How many times have you consulted a doctor about breast lumps. Is it

1
Once
2
Twice
3
3 times or
4
More than 3 times?

I would now like to ask you some questions about your first consultation about breast lumps. When did you have your first consultation. Please either tell me the year or how old you were at the time?

1
Age
2
Year
If Age to question 70b go to Q70c
qc_70_b == 1

Age

Age 0-53
If Year to question 70b go to Q70d
qc_70_b == 2

Year

Year 1946-2001

So your first consultation was in [LFF year] when you were [LFF age]. Is that correct?

1
Yes
2
No
If No to question 70e
qc_70_e == 2
Nurse: go back and amend

In what month of [LFF year] did you have your first consultation? Month

Month of year

Looking at the show card E, please tell me what was the diagnosis. Please choose an answer from this card.

1
No abnormality
2
Benign breast lump
3
Breast cancer
4
Other, specify at next question
5
Status unknown
If No abnormality, Benign breast lump, Breast cancer or Status unknown to question 70g go to Q70i
qc_70_g == 1 || qc_70_g == 2 || qc_70_g == 3 || qc_70_g == 5
Else

What was the diagnosis?

Other

Did you have a breast biopsy, (that is having a small piece of tissue removed from your breast)?

1
Yes
2
No
If No to question 70i go to Q71
qc_70_i == 2
Else

What is the name of the hospital you attended for your biopsy in [LFF month and year].

Generic text

What town is the hospital in?

Generic text

And can you tell me the name of the consultant in charge of your biopsy?

Generic text
If only one consultation about breast lumps go to Q72.
Else

I would now like to ask you some questions about your most recent consultation about breast lumps. When did you have your most recent consultation. Please either tell me the year or how old you were at the time?

1
Age
2
Year
If Age to question 71 go to Q71b
qc_71 == 1

Age

Age 0-53
If Year to question 71 go to Q71c
qc_71 == 2

Year

Year 1946-2001

So your first consultation was in [LFF year] when you were [LFF age]. Is that correct?

1
Yes
2
No
If No to question 71d
qc_71_d == 2
Nurse: go back and amend.

In what month of [LFF year] did you have your first consultation? Month

Month of year

Looking at the show card E, please tell me what was the diagnosis. Please choose an answer from this card.

1
No abnormality
2
Benign breast lump
3
Breast cancer
4
Other, specify at next question
5
Status unknown
If No abnormality, Benign breast lump, Breast cancer or Status unknown
qc_71_f == 1 || qc_71_f == 2 || qc_71_f == 3 || qc_71_f == 5
Else

What was the diagnosis?

Other

Did you have a breast biopsy, (that is having a small piece of tissue removed from your breast)?

1
Yes
2
No
If No to question 71h go to Q72
qc_71_h == 2
Else

What is the name of the hospital you attended for your biopsy in [LFF month and year].

Generic text

What town is the hospital in?

Generic text

And can you tell me the name of the consultant in charge of your biopsy?

Generic text

To help analyse this information more effectively, we may wish to obtain a copy of your mammogram. Would you be willing for the Medical Research Council to do that?

1
Yes
2
No
If No to question 72 Nurse: circle code 08 on front of consent booklet.^ Go to Q73
qc_72 == 2
Else
In order for this to be done, we need to obtain your written permission. Could you please read Consent Form 4 then sign and date it? Nurse: Please make sure the form is correctly signed and dated. ^ Nurse: Circle code 07 on front of consent booklet. ^

In the last 12 months, have you had pain or stiffness in your left hand or fingers on most days for at least a month?

1
Pain
2
Stiffness
3
Neither

In the last 12 months, have you had pain or stiffness in your right hand or fingers on most days for at least a month?

1
Pain
2
Stiffness
3
Neither

Do you have difficulty because of long term health problems holding something heavy like a full kettle or removing a stiff lid from a jar?

0
No
1
Yes

Now I would like to examine your hands for any bumps or swellings. Would you be willing for me to examine your hands?

1
Yes
2
No refuses
3
No for some other reason
If No refuses or No for some other reason to question 76 go to Q77
qc_76 == 2 || qc_76 == 3
Else

Fill out details on front cover and make examination of each hand and record markings on page 2 of paper test booklet. Serial: [LFF] Date: [LFF] #^

Serial number 0-60
Generic date

How frequently at home or at work do you use your hands in strong movements, such as squeezing water out of a towel, playing racket sports, digging the garden, or carrying heavy items such as a suitcase, briefcase, bucket or shopping bag. Please choose an answer from this card.

1
Several times a day
2
Once a day
3
Once or several times a week
4
Occasionally
5
Never

Do you have difficulty because of long term health problems using either arm to reach up high above your head or to reach behind to tuck a shirt in or do up a zip?

1
Yes
2
No

How frequently at home or at work do you use your arms to reach up above head, such as dusting high pictures, replacing light bulbs, reaching objects on high shelves, or gardening activities like pruning or trimming high hedges. Please choose an answer from this card.

1
Several times a day
2
Once a day
3
Once or several times a week
4
Occasionally
5
Never

In the last 12 months, have you had pain or stiffness in your left knee on most days for at least a month?

1
Pain
2
Stiffness
3
Neither

In the last 12 months, have you had pain or stiffness in your right knee on most days for at least a month?

1
Pain
2
Stiffness
3
Neither

Have you ever injured your knees badly enough to see a doctor about it?

1
Right knee
2
Left knee
3
Never had a knee injury

In the last 12 months, have you had sciatica, lumbago or severe backache?

1
Yes
2
No

Do you find it difficult to walk for a quarter of a mile on the level because of long term health problems?

1
Yes
2
No
If No to question 84 go to Q85
qc_84 == 2
Else

How far can you walk without stopping or severe discomfort. Would you say

1
More than 400 yards
2
200 to 400 yards
3
50 to 200 yards or
4
Less than 50 yards

Do you find it difficult walking up and down stairs, because of long term health problems?

1
Yes
2
No
If No to question 85 go to Q86
qc_85 == 2
Else

Can you walk up and down a flight of 12 stairs in a normal manner without holding on or taking a rest?

1
Yes
2
No

Do you easily fall or have difficulty keeping your balance because of long term health problems?

1
Yes
2
No

Have you fallen at all in the past 12 months that is since [LFF month and year]?

1
Yes
2
No
If No to question 86b go to Q87
qc_86_b == 2
Else

How many times have you fallen in the past 12 months. Have you fallen

1
Once or twice
2
Between 3 and 11 times or
3
Have you fallen 12 or more times in the past 12 months

I would now like to assess your balance and co-ordination. First, I will ask you to fold your arms and, after I count up to three, stand on your preferred leg, and raise your other foot off the floor like this (nurse demonstrate). I will ask you to hold this position for as long as you can or until I tell you to stop. Then I want you to repeat the test with your eyes closed. Would you be willing to have a go?

1
Respondent willing
2
Respondent not willing
3
Respondent unable to perform test
If Respondent not willing or Respondent unable to perform test to question 87 go to Q88
qc_87 == 2 || qc_87 == 3
Else

Which is your dominant leg (ignoring any current injury)?

1
Right leg
2
Left leg

Nurse carry out test with cohort member's eyes open. Allow the cohort member to practice.

1
Balance measured
2
Balance refused
3
Balance attempted, not obtained
4
Balance not attempted
If Balance refused, Balance attempted, not obtained or Balance not attempted to question 87c go to Q87e
qc_87_c == 2 || qc_87_c == 3 || qc_87_c == 4
Else

Nurse: record time for balance test with eyes open. Time

Seconds

Nurse carry out test with cohort member's eyes open.

1
Balance measured
2
Balance refused
3
Balance attempted, not obtained
4
Balance not attempted
If Balance refused, Balance attempted, not obtained, or Balance not attempted to question 87e go to Q88
qc_87_e == 2 || qc_87_e == 3 || qc_87_e == 4
Else

Nurse: record time for balance test with eyes closed. Time

Seconds

I would now like you to do some chair stands. First I will ask you to fold your arms and, after I count up to three, I will ask you to stand up from your chair and sit down again ten times like this (nurse demonstrate). Would you be willing to have a go?

1
Respondent willing
2
Respondent not willing
3
Respondent unable to perform test
If Respondent not willing or Respondent unable to perform test to question 88 go to Q89
qc_88 == 2 || qc_88 == 3
Else

Nurse: Let the cohort member practice then record time for chair stands test.

Number 0-888

Have you broken a bone since you were 25 years old?

1
Yes
2
No

Have you ever been knocked unconscious by a blow to the head?

1
Yes
2
No

In the last 4 weeks, that is since [LFF day and date], have you taken part in any sports or vigorous leisure activities or done any exercises in your spare time, not including getting to and from work?

1
Yes
2
No
If No to question 91 go to Q92
qc_91 == 2
Else

On how many occasions in the last 4 weeks did you do these activities? Number

Number 1-100

On how many of these occasions did your exercise make you sweaty and or out of breath? Number

Number 0-100

The next few questions are about your social life, particularly with friends and relatives who do not live at home with you. ^ Are there any relatives or friends with whom you have regular contact, either by visit, telephone or letters?

1
Yes
2
No

Thinking of all your relatives or friends, how often do you regularly visit or are visited by these people. Do you see them

1
Never/almost never
2
Once every few months
3
About once a month
4
About once a week
5
Almost daily

How often do you regularly visit or are visited by these persons?

1
Never/almost never
2
Once every few months
3
About once a month
4
About once a week
5
Almost daily

How many relatives or friends do you see once a month or more?

1
None
2
1-2
3
3-5
4
6-10
5
More than 10

Do you think that you have friends, neighbours or relatives who would help you out if a problem or crisis came up? Would you say you had

1
No one to help
2
Would sometimes get help
3
Would often get help, or
4
Would always get help?

Overall do you wish that you had more of a social life, or are things about right for you, or would you prefer to see less of people?

1
Prefer less
2
About right
3
Prefer more

I would now like to ask you some questions about things you have experienced over the last 12 months, that is since [LFF month and year]. Thinking back over the last 12 months have you developed, or found out that you have, a serious illness or disability?

1
Yes
2
No

Have you had an accident or received an injury which has affected you for a month or more?

1
Yes
2
No

Have you been assaulted, robbed or been a victim of attempted robbery?

1
Yes
2
No

Have you lost your job or thought you would soon lose your job?

1
Yes
2
No

Have you had any other crises or serious disappointments in your work or career in general?

1
Yes
2
No

Have you moved house in the last 12 months?

1
Yes
2
No

Did you move away from the area where most of your friends lived?

1
Yes
2
No

During the last 12 months has your spouse/partner had a serious accident or illness, or received a serious injury, or been assaulted?

1
Yes
2
No
3
No spouse/partner

Has your spouse/partner lost their job or thought they would soon lose their job?

1
Yes
2
No
3
No spouse/partner

Has your spouse/partner had any other crises or serious disappointments in their work?

1
Yes
2
No
3
No spouse/partner

Have you had any serious disagreements with your spouse/partner or felt betrayed or disappointed by them?

1
Yes
2
No
3
No spouse/partner

In the last 12 months have you had any serious difficulties with any of your children, because of their health or behaviour or for other reasons?

1
Yes
2
No
3
No children

Has a friend or relative (other than your spouse/partner or children) or someone you know well had a serious accident or illness or received a serious injury?

1
Yes
2
No
3
Not had a friend/relative known anyone well this year

Has a friend or relative or someone you know well died during the last 12 months?

1
Yes
2
No
3
Not had a friend/relative known anyone well this year

Have you fallen out or had a serious disagreement with a friend or relative or felt betrayed by them?

1
Yes
2
No
3
Not had a friend/relative known anyone well this year

Have you lost contact with a close friend or relative for any other reason?

1
Yes
2
No
3
Not had a friend/relative known anyone well this year

Have you had any other serious upsets or disappointments in the last year?

1
Yes
2
No
If No to question 96q go to Q97
qc_96_q == 2
Else

What were they?

Generic text

The next section of the interview is about paid work. Are you currently in paid work?

1
Yes
2
No
If Yes to question 97 go to Q98
qc_97 == 1
Else

Are you seriously looking for any kind of paid work?

1
Yes
0
No
If Yes to question 97b go to Q97d
qc_97_b == 1
Else

What is the main reason you are not seeking paid work.

1
Student
2
Looking after home/family
3
Caring for dependent relatives
4
Temporarily sick or injured
5
Long term sick or disabled
6
Retired from paid work
9
Other reasons
Other

Since 1989 have you had any paid work, include any job held in 1989?

1
Yes
2
No

I am now going to ask some questions about your spouse/partner's work. Is your spouse/partner currently in paid work?

1
Yes
2
No
If Yes to question 98 go to Q98d
qc_98 == 1
Else

Are they seriously looking for any kind of paid work?

1
Yes
0
No

Since 1989 have they had any paid work, include any job held in 1989?

1
Yes
0
No

What is the full title of your partner's current or most recent job?

Generic text

What are/were the main things they do/did in the job?

Generic text

Are/were they working as an employee or are/were they self-employed?

1
Employee
2
Self employed
If Employee to question 98f go to Q98i
qc_98_f == 1
Else

Do/did they have any managerial duties, or are/were they supervising any other employees?

1
Manager
2
Foreman, supervisor or chargehand
3
Not supervising others

How many employees are/were there at the place where they work(ed)?

1
1 to 9
2
10 to 24
3
25 to 499
4
500 or more
If 1 to 9, 10 to 24, 25 to 499 or 500 or more to question 98h or Self employed to question 98f go to Q99
qc_98_h == 1 || qc_98_h == 2 || qc_98_h == 3 || qc_98_h == 4 || qc_98_f == 2
Else

Do/did they work on their own or do/did they have any employees?

1
On own / with partner(s) but no employees
2
With employees
If On own / with partner(s) but no employees to question 98i go to Q99
qc_98_i == 1
Else

How many people do/did they employ at the place where they work(ed)?

1
1 to 9
2
10 to 24
3
25 to 499
4
500 or more

Please use this card to tell me your total net household income. Include your own and your partner’s earned income (after deduction for income tax and national insurance), any state benefits and any other sources of income such as pensions and interest. You should also include contributions from other members of your household (such as children). Tell me which of the letters on this card represents your total net household income?

1
A
2
B
3
C
4
D
5
E
6
F
7
G
8
H
9
I
10
J
11
K
12
L
13
M
14
N
15
O
16
P
17
Q
18
R

I would now like to ask you some questions about your present job. What is the full title of your present job?

Generic text

What are/were the main things you do/did in the job?

Generic text

Are/were you working as an employee or self-employed?

1
Employee
2
Self employed
If Self employed to question 100c go to Q101
qc_100_c == 2
Else

Did/do you have any managerial duties, or were/are you supervising any other employees?

1
Manager
2
Foreman, supervisor or chargehand
3
Not supervising others

How many employees are/were there at the place where you work(ed)?

1
1-9
2
10 to 24
3
25 to 499
4
500 or more

Were/are you working on your own or did/do you have employees?

1
On own / with partner(s) but no employees
2
With employees
If On own/with partner(s) but no employees to question 101 go to Q101c
qc_101 == 1
Else

How many people did/do you employ at the place where you worked/work?

1
1-9
2
10 to 24
3
25 to 499
4
500 or more

In this job do/did you work

1
Full time, that is 30 hours or more per week
2
Or part-time

I would next like to ask you about your usual gross earnings before any deductions and including overtime. What pay period would it be convenient for you to use

1
One week
2
Four weeks or a month
3
Or one year

Which of the letters on this card represents your usual gross earnings for that pay period, before any deductions, and including regular overtime?

1
A
2
B
3
C
4
E
5
F
6
G
7
H
8
I
9
J
10
K
11
L
12
M
13
N
14
O
15
P
16
Q
17
R
18
S
19
T
20
U
21
V
22
W
23
X
24
Y
25
Z

How many hours a week do you usually work in this job, including regular overtime? Hours

Hours 0-120

Does your employer contribute towards your pension?

1
Yes
2
No

As well as this job, do you have a second job?

1
Yes
2
No

Since 1989, how many jobs have you had altogether, including any job held in 1989 and any current job?

Number 0-100

Going back to 1989, have you had any spells of a month or more when you were not in any kind of paid work?

1
Yes
0
No

Since 1989, how much of the time have you not been in any paid work? Choose an answer from this card?

2
Less than 6 months
3
6 - 11 months
4
1-4 years
5
5-9 years
6
Since 1989

And how much of that time were you unemployed, that is seriously looking for work. Please choose an answer from this card?

1
None of the time
2
Less than 6 months
3
6 - 11 months
4
1 - 4 years
5
5 - 9 years
6
Since 1989

Now please think of your present job. On the whole, how happy would you say you are /were with your job? Would you say you were

1
Very happy
2
Fairly happy
3
Not very happy, or
4
Unhappy

How often did you find your work stressful? Would you say that it was

1
Rarely stressful
2
Sometimes stressful
3
Stressful most of the time, or
4
Stressful all of the time

On your present income do you find (as a family)

1
that it’s really quite hard to manage
2
that you manage fairly well
3
that you manage comfortably

Has your family/have you had to go without things you really needed in the last year because you were short of money?

1
Yes, often
2
Yes, sometimes
3
No

Have you found you have been unable to pay the bills in the last year because you were short of money?

1
Yes, often
2
Yes, sometimes
3
No

Over the past 12 months would you say that you had more trouble than you used to with Anything that requires memory for example keeping appointments, remembering where you put things, remembering names of people or objects, remembering short lists of things to do?

1
Yes
2
No

Now for something different. I want to see how well you remember a list of fifteen words. I will show you one word at a time and when I reach the end of the list you have one minute to write down as many words as you can. Please write the words in any order you like. It is best not to talk to anyone while you are doing this.

1
Word tests administered
2
Test not attempted - respondent has difficulty reading/writing
3
Word lists refused
If Test not attempted - respondent has difficulty reading/writing or Word lists refused to question 108 go to Q109
qc_108 == 2 || qc_108 == 3
Else

Nurse: Show the words at two second intervals using Word List [FF A/B]. Make sure the last word is shown for two seconds. Tell respondent to start. Start the stopwatch and time for one minute then tell the respondent to finish. #^ Turn booklet to page 5. Show the words again. Tell respondent to start. Start the stopwatch and time for one minute then tell the respondent to finish. #^ Turn booklet to page 7. Show the words again. Tell respondent to start. Start the stopwatch and time for one minute then tell the respondent to finish. #^

1
All 3 trials were attempted
2
2 out of the 3 trials were attempted
3
Only one trial was attempted
4
None of the trials were attempted
If All 3 trials were attempted, 2 out of the 3 trials were attempted or Only one trial was attempted to question 108b go to Q109
qc_108_b == 1 || qc_108_b == 2 || qc_108_b == 3
Else

Nurse: Please record why no word list trials were done.

Generic text

I would now like to see how quickly you can work through this list, crossing out the P's and W's. Start at the top left where the arrow is and work along the row from left to right, then go to the beginning of the next row and work from left to right again, like reading a page. Carry on this way crossing out any P's and W's with one mark of the pencil like this. (Demonstrate). Carry on until I tell you to stop. Work as quickly and as accurately as you can.

1
Letter search attempted
2
Letter search not attempted
If Letter search attempted to question 109 go to Q110
qc_109 == 1
Else

Nurse: Please record why the letter search was not attempted.

Generic text

Do you remember that list of 15 words I showed you earlier. I would like you to write down as many of those words as you can remember. I would like you to write down as many of those words as you can remember.

1
Fourth trial attempted
2
Fourth trial not attempted
If Fourth trial attempted to question 110 go to Q111
qc_110 == 1
Else

Nurse: Please record why fourth word list trial was not attempted.

Generic text

Later on I am going to give you a name and address to write on this envelope. When you have finished doing that I would like you to do the following: Turn it over, seal it, and write your initials on the back. Could you remember to do that then, without me reminding you?

1
Respondent will do the test
2
Respondent refuses to do the test

Now I would like you to tell me the names of as many different animals as you can in one minute? Animals are everything that is not vegetable or mineral.

1
Respondent will do the test
2
Respondent refuses to do the test

Please write the following name and address on this envelope: John Brown, 42 West Street, Bedford. Please go on remembering this name and address and I will ask you about it later.

1
Yes, both actions completed correctly, without prompting
2
Only one action completed, without prompting
3
No actions completed, without prompting

I would now like you to read slowly down this list of words, starting here (nurse point to chord). Continue down this column and onto the next. I must warn you that there are many words that you won’t recognise. In fact most people don’t know them, so just guess at these. Please begin when you are ready.

1
NART test attempted
2
NART test not attempted
3
NART test terminated early
If NART test attempted or NART test terminated early to question 114 go to Q115
qc_114 == 1 || qc_114 == 3
Else

Nurse enter reason test not attempted.

Generic text

Can you tell me the name and address I asked you to remember a short while ago?

1
John
2
Brown
3
42
4
West
5
Street
6
Bedford
7
None of the above
8
Refused

Nurse: Did the survey member have visual difficulty during testing?

1
No difficulty
2
Mild difficulty
3
Severe difficulty
4
No tests done

Nurse: Did the survey member have hearing difficulty during testing?

1
No difficulty
2
Mild difficulty
3
Severe difficulty
4
No tests done

I would now like you to fill in this questionnaire while I am getting the equipment out for the medical exam. Please ask me if any of the questions are not clear.

1
Booklet accepted
2
Booklet refused

Nurse: count up and enter the number of animals mentioned. Number

Number 0-100

Nurse: Has CM completed the self completion booklet?

1
Yes
2
No

Nurse: Collect self-completion booklet and record.

1
Booklet completed independently
2
Booklet completed with assistance from interviewer
3
Booklet completed with assistance from someone else
4
Booklet refused

I would now like to take some physical measurements but before I do I need to obtain your written consent. Please read, sign and date form 5 of the consent booklet.

1
Form 5 signed
2
Form 5 refused
If Form 5 signed to question 119
qc_119 == 1
Nurse: circle 09 on front of consent booklet. #^
If Form 5 refused to question 119
qc_119 == 2
Nurse: circle 10 on front of consent booklet. #^
If female ask
qc_4 == 2

Can I check, are you pregnant at the moment?

1
Yes
2
No
If Yes to question 119b Respondent is pregnant. No measurements to be done. ^ go to Lung function
qc_119_b == 1
Else

(As I mentioned earlier) I would like to measure your blood pressure. If asked The analysis of blood pressure readings will tell us a lot about the health of the population. Are you willing to have your Blood Pressure measured?

1
Yes, agrees
2
No, refuses
3
Unable to measure BP for reason other than refusal
If Unable to measure BP for reason other than refusal go to Q121
qc_120 == 3
Else
If No, refuses to question 120 go to Q120i
qc_120 == 2
Else

Nurse: Enter serial of Omron. Serial

Serial number 0-60

Enter first pulse reading (bpm). Pulse

Beats per minute

Enter first systolic reading (mmHg). Systolic

Millimetres 1-999

Enter first diastolic reading (mmHg). Diastolic

Millimetres 1-999

Enter second pulse reading (bpm). Pulse

Beats per minute

Enter second systolic reading (mmHg). Systolic

Millimetres 1-999

Enter second diastolic reading (mmHg). Diastolic

Millimetres 1-999
Your blood pressure is [LFF normal/...?] ^ Nurse: Circle code 20 on front of consent booklet. ^ go to Q121
qc_120_h >= 1 && qc_120_h <= 999
Else

Record why reading refused.

1
Respondent upset/anxious/nervous
2
Other reason(s) (Specify at next question)
If Respondent upset/anxious/nervous to question 120i
qc_120_i == 1
code 20

Enter full details of other reason(s) for not obtaining/attempting two BP readings.

Other

Now I would like to measure your lung function. Can I check, have you had abdominal or chest surgery in the past three weeks?

1
Yes
2
No
If Yes to question 121 go to Q122
qc_121 == 1
Else

Have you been admitted to hospital for a heart complaint or stroke in the past six weeks?

1
Yes
2
No

In the past three weeks, have you had any respiratory infections such as influenza, pneumonia, bronchitis or a severe cold?

1
Yes
2
No

(Can I just check), have you used an inhaler, puffer or any medication for your breathing in the last 24 hours?

1
Yes
2
No

How many hours ago did you use it? Hours

Hours 0-24

(As I mentioned earlier). We would like to measure your lung function which will help us to find out more about the health of the population. Would you be willing to have your lung function measured?

1
Yes
2
No
If No to question 121f go to Q122
qc_121_f == 2
Else

Nurse: Enter the two-digit spirometer serial number. Enter a numeric value between 1 and 60.

Serial number 0-60
Explain the procedure and demonstrate the test. Record the results of two blows by the respondent in the boxes below. Record each blow as it is carried out. For each blow, enter measurements and code whether technique was satisfactory. ^

First blow.

Number 0-9.95

First blow.

Number 0-9.95

First blow.

Number 0-200

First blow.

Number 0-995
First blow. Now switch off the spirometer and switch it on again to take another reading. Press enter to continue.

First blow. Technique satisfactory?

Generic text

Second blow.

Number 0-9.95

Second blow.

Number 0-9.95

Second blow.

Number 0-200

Second blow.

Number 0-995
Second blow. Now switch off the spirometer and switch it on again to take another reading. Press enter to continue.

Second blow. Technique satisfactory?

Generic text

I would now like to measure your height and weight.

1
Standing height measured
2
Standing height refused
3
Standing height attempted, not obtained
4
Standing height not attempted

Nurse: Measure standing height and enter in centimetres to nearest 0.5cm.

Centimetres 0-244

You are [LFF] centimetres high or [LFF] feet [LFF] inches?

1
Yes
2
No

Nurse code:

1
Sitting height measured
2
Sitting height refused
3
Sitting height attempted, not obtained
4
Sitting height not attempted

Nurse: Measure sitting height and enter in centimetres to nearest 0.5cm.

Centimetres 0-244

Nurse code:

1
Weight measured
2
Weight refused
3
Weight attempted, not obtained
4
Weight not attempted

A few interviews on any survey are checked by a supervisor to make sure people are happy with the way the interview was carried out. In case my supervisor needs to contact you ...

1
Telephone number obtained
2
Telephone number refused
3
No telephone number available
^ to close the interview. Please enter the first four digits of your nurse number. If already entered just press <enter> to continue.
End

nshd_99_cq

MRC NATIONAL SURVEY OF HEALTH AND DEVELOPMENT
University College London Medical School
Department of Epidemiology and Public Health
NURSE INTERVIEW 1999
CAPI Version 5
23rd January 2002
Normal text Nurse reads this out to cohort member
Bold Emphasis for the nurse when reading out question
Italics Instruction to nurse only
# Instruction to nurse to press shift and F2 to save
^ Instruction to nurse to press 1 to continue
[ ] Indicates inserted feed forward data from elsewhere
FF Warren's feed forward data
LFF Local feed forward data (i.e. data collected in interview)
SFF SCPR feed forward data
Point number
Point number
Serial number
Serial number 1001-7002
Interview date Version: Ver05. # ^
Generic date
Before I start the interview, I need to check that I have opened the right file for you.
1
Male
2
Female
Can I check? What day in March is your birthday? Birth date
Date in March
Can I check, is your name still ... (read from ARF) or have you changed it for any reason?
1
Same
2
Changed
Nurse: please record name change details in full on ARF page 1 by label. ^
Nurse: please code whether you are interviewing the cohort member themselves or conducting a proxy interview with the cohort member's carer?
1
Interview conducted with cohort member
2
Interview conducted with carer
Before we begin the interview, I need to get your written permission to carry out this interview. Please read and sign Consent Form 1.
1
Form 1 signed
2
Form 1 refused
Nurse: circle codes 01 and 04 on front of consent booklet. ^
Nurse: circle codes 02, 04, 06, 08, 10, 12, 14, 16, 18, 20, 22, 24 and 26 on front of consent booklet.
Before we begin the interview, I need to get your written permission to carry out this interview on behalf of the cohort member. Please read and sign Consent Form 2.
1
Form 2 signed
2
Form 2 refused
Nurse: circle codes 02 and 03 on front of consent booklet. ^
Nurse: circle codes 02, 04, 06, 08, 10, 12, 14, 16, 18, 20, 22, 24 and 26 on front of consent booklet.
Nurse to code: Is cohort member in an institution?
1
Yes
2
No
I would like to start by asking you some questions about your household. How many people in total live in this household, including yourself? Number
Number 1-20
Do you have a husband/wife or partner living in this household?
1
Spouse
2
Partner
3
Neither
How many children under 16 live in your household all of the time? Include any step, adopted or foster children you are responsible for. Number
Number 0-15
Now children aged 16 or over, including grown up ones. How many live in your household all of the time? Number
Number 0-15
Now I would like to get some general information about your household. Does your household own or rent this accommodation? Please give an answer from this card.
1
Owns it or is buying it
2
Renting it from the Council
3
Renting if from a relative
4
Renting it from a private landlord
5
Renting it from a housing association
6
Other (please specify)
In what way does your household occupy this accommodation?
Other
I would now like to update our records about marriages and partners. First, what is your current marital status ...
1
Single, that is never married
2
Married and living with your husband/wife
3
Married and separated from your husband/wife
4
Divorced
5
Or, widowed?
Can I check, have you been married once or more than once? Number
Number 0-9
Since we last interviewed you in [FF], have you lived with a partner for more than a year?
1
Yes
2
No

_marriage < &&

Thinking of your [LFF e.g. first/second/last] marriage, when were you married. Can you tell me the year? Year or age
Number 16-1999
How did this marriage end?
1
Marriage not ended
2
Death
3
Divorce
4
Separation
When did your partner die - just tell me the year. Year
Year 1956-2000
When did you stop living together - just tell me the year? Year
Year 1956-2000
If more marriages, go back to Q16a
Turning now to children of your own ... Refer only to biological children. Exclude still births and miscarriages. ^ Have you ever had any children of your own.
1
Yes
2
No
How many children of your own have you had altogether? Number
Number 0-25

(_children <= qc_17_b) && (_children < 26)

Thinking of your [LFF e.g. first/next/last] child ... ^ What is your child called?
Generic text
Is [LFF] a boy or girl?
1
Boy
2
Girl
In what year was [LFF] born? Year
Year 1960-2000
If more children, ^, go back to Q18
Do any of your own children now have children of their own?
1
Yes
2
No
In what year was the first one born? Year
Date of birth
Now something about hospital treatment. Since we last saw you in [FF year], when you were [FF age], have you been admitted to hospital as an in-patient?
1
Yes
2
No
How many times have you been admitted to hospital since we saw you last in [FF year]? Number
Number 1-25

(_admissions <= qc_20_b) && (_admissions < 26)

I would like some information about your in-patient admissions. ^ Thinking of the [LFF time e.g. first/last] time you were in hospital as an in-patient since we last saw you in [FF]. Which hospital did you go into? ...
Generic text
Which town was this in?
Generic text
Were you an NHS or a private patient?
1
NHS
2
Private
When did you go in, first tell me the month and then the year? Month
Month of year
And the year? Year
Year 0-2000
Why were you admitted to hospital as an in-patient on this occasion?
Generic text
What was the name of the ward you were in?
Generic text
What was the name of the doctor who was in charge of your case while you were in hospital?
Generic text
If more inpatient hospital admissions, go back to Q21a
Thank you for your help with these questions. It is possible that the research team at the Medical Research Council would like to obtain more information from the hospital's records. May we ask your permission to consult your hospital records?
1
Yes, permission given
2
Permission refused
Before the Medical Research Council can look at your records, they need to have your written consent to confirm that you have no objection to them collecting fuller information about your in-patient stay(s) in hospital. Please read and sign Consent form 3.
1
Signature obtained on Consent Form 3
2
Signature not obtained (Enter note to say why)
Nurse: circle code 05 on front of consent booklet. ^
Nurse: circle code 06 on front of consent booklet. ^
Now some questions about going into hospital as a day patient for treatment or surgery. Since we last saw you in [FF year], aged [FF age], have you spent a day at a hospital for treatment or surgery and then come home at the end of the day?
1
Yes
2
No
Have you been in hospital as a day patient for just one illness or condition or have you been in for more than one type of problem? Number
Number 1-25

(_admissions <= qc_23_b) && (admissions < 26)

I would like some information about the problems that caused you to go into hospital as a day patient for treatment or surgery. What was the illness or condition that was being treated on the first occasion since [FF year]
Generic text
In which year or what age did you go into hospital as a day patient for this first problem? Year
Year 0-2000
If more day patient admissions, go back to Q24a.
Now I am going to ask you some questions about your general health. Have you ever been told by a doctor that you have had angina?
1
Yes
2
No
How old were you when you first had this problem? Age
Age 0-53
Have you had any more attacks since then?
1
Yes
2
No
How old were you when you last had this problem? Age
Age 0-53
Have you consulted a doctor or other health professional about your angina in the last 12 months?
1
Yes, a doctor
2
Yes, another health professional
3
No
How often have you consulted a doctor about your angina in the last 12 months? Number
Number 0-100
How often have you consulted a health professional about your angina in the last 12 months? Number
Number 0-100
Have you taken any prescribed medicines or tablets for your angina in the last 12 months?
1
Yes
2
No
3
(Can't remember)
Please tell me the name of the prescribed medicines or tablets that you have taken for this in the last 12 months.
Generic text
Have you ever had any pain or discomfort in your chest?
1
Yes
2
No
Have you ever had any pressure or heaviness in your chest?
1
Yes
2
No
Do you get it when you walk uphill or hurry?
1
Yes
2
No
3
Never walks uphill or hurries
Do you get it when you walk at an ordinary pace on the level?
1
Yes
2
No
3
Never walks
What do you do if you get it while walking? Do you
1
Stop or slow down
2
Carry on or
3
Carry on after taking a nitro-glycerine tablet under your tongue?
And if you stand still what happens to it. Does the pain in your chest
1
Go away
2
Or not go away?
How soon does it go away. Does it go in
1
10 minutes or less
2
Or more than 10 minutes?
Will you show me where you get this pressure or heaviness in the chest?
1
Sternum (upper or middle)
2
Sternum lower
3
Left anterior chest
4
Left arm
5
Right anterior chest
6
Right arm
7
(Somewhere else)
Did you see a doctor or hospital specialist because of this pain or discomfort?
0
No
1
Yes, GP
2
Yes, hospital specialist
Do you get pain in either leg on walking?
1
Yes
2
No
3
Respondent is chair/bed bound
Does this pain ever begin when you are standing still or sitting?
1
Yes
2
No
In what part of your leg do you feel this pain or discomfort?
1
In calf muscle(s)
2
Not in calf muscle(s)
Do you get it if you walk uphill or hurry
1
Yes
2
No
3
Never hurries or walks uphill
Do you get it when you walk at an ordinary pace on the level?
1
Yes
2
No
3
Never walks
Does the pain ever disappear while you are walking?
1
Yes
2
No
What do you do if you get it when you are walking? Do you
1
Stop or slow down
2
Carry on
What happens to it if you stand still. Is the pain
1
Still not relieved
2
Or does it go away?
How soon does it go away. Does it go in
1
10 minutes or less
2
Or more than 10 minutes?
Have you ever suffered from a heart attack?
1
Yes
2
No
How many heart attacks have you had? Number
Number 1-20
Who diagnosed these heart attack(s). Was it
1
A GP,
2
A specialist,
3
Or was no medical diagnosis made?
How old were you when you had your first heart attack? Age
Age 0-53
How old were you when you had your most recent heart attack? Age
Age 0-53
Now I would like to ask you about some more specific health problems or illnesses. #^ Looking at this card, please tell me which of these kinds of heart trouble you have had, if any, in the last ten years that is since you were 43 years old?
1
Coronary thrombosis
2
Myocardial infarction
3
Valvular disease
4
Aortic stenosis
5
Ischaemic heart disease
6
Tachycardia
7
Palpitations or heart murmur
8
Other (please specify)
9
None of these
What kind of heart trouble have you had?
Other
Has a doctor said you had this problem?
1
Yes
2
No
How old were you then? Age
Age 0-2000
Have you had any kind of blood pressure problems in the last ten years that is since you were 43 years old?
1
Yes
2
No
What blood pressure problems have you had?
1
Hypertension/high blood pressure
2
Low blood pressure
3
Other kind of blood pressure
Has a doctor said you had this problem?
1
Yes
2
No
How old were you then? Age
Number 0-2000
And in the last ten years (that is since you were 43 years old,) have you had a stroke?
1
Yes
2
No
Has a doctor said you had this problem?
1
Yes
2
No
How old were you then? Age
Number 0-2000
And in the last ten years (that is since you were 43 years old,) have you had a thyroid disorder?
1
Yes
2
No
What kind of thyroid disorder have you had?
1
Goitre
2
Hyperthyroidism
3
Hypothyroidism
4
Other
Has a doctor said you had this problem?
1
Yes
2
No
How old were you then? Age
Number 0-2000
And in the last ten years (that is since you were 43 years old,) have you had meningitis or encephalitis?
1
Yes
2
No
Has a doctor said you had this problem?
1
Yes
2
No
How old were you then? Age
Number 0-2000
(And) in the last ten years (that is since you were 43 years old,) have you had shingles?
1
Yes
2
No
Did you have shingles
1
Yes, involving the eyes
2
Yes, not involving the eyes
3
No
Has a doctor said you had this problem?
1
Yes
2
No
How old were you then? Age
Number 0-2000
And in the last ten years (that is since you were 43 years old,) have you ever had any fits or epilepsy?
1
Yes
2
No
Has a doctor said you had this problem?
1
Yes
2
No
How old were you then? Age
Number 0-2000
And in the last ten years (that is since you were 43 years old,) have you had cancer?
1
Yes
2
No
Looking at this card [please tell me what type of cancer you have had in the last ten years?
1
Leukaemia
2
Hodgkin's disease
3
Lymphoma
4
Skin cancer
5
Bone cancer
6
Breast cancer
7
Cancer of the uterus
8
Cancer of the cervix
9
Cancer of the colon
10
Other (specify)
What other kind of cancer have you had?
Other
Has a doctor said you had this problem?
1
Yes
2
No
How old were you then? Age
Number 0-2000
And in the last ten years (that is since you were 43 years old,) have you had Chronic fatigue syndrome or Myaligic encephalomyelitis, better known as ME?
1
Yes
2
No
Has a doctor said you had this problem?
1
Yes
2
No
How old were you then?
Number 0-2000
And in the last ten years (that is since you were 43 years old,) have you had diabetes?
1
Yes
2
No